Welcome to a site that hopefully will link you to not only my journey with dystonia but tons of information. I want to thank everyone who has let me take on the role of advocate in order to deal with and face this really annoying life changing event:)
I have been a bit "off" with posting new you tube videos but now I think I am back on track and will be posting more in the near future. (May 09)

PLEASE HELP ME WITH MY NEXT PROJECT!
I have created a small 10 question survey on survey monkey and when I get to 50 stories I am going to publish them and have them available on my website, amazon.com, and at events to raise awareness and help raise money for the Dystonia Medical Research Foundation!
IF YOU HAVE ANY FORM OF DYSTONIA please take a few moments to tell your story. Only first names will be used.

Click Here to take survey

Wish you knew the backstory?
It is now published @
http://neighborsgo.com/index.php?page_id=1000&site_page_id=5&post_id=17914
Please add us to www.myspace.com/wannabearobot
and thank you to everyone who has been helping in so many ways!

dystonia is taking over my body but with ever move it makes i become a stronger advocate for a cure!

Feel free to email me at shakeyamy@gmail.com and I will answer any questions or just try to help. I may not reply right away but I will!